Recurrent focal segmental glomerulosclerosis (rFSGS) Conference

Purpose

To convene a one-day conference—an in-person gathering of patients, families, doctors, researchers, funders, and political leaders—to raise awareness of recurrent focal segmental glomerulosclerosis (rFSGS) and to encourage sharing information, research, patient stories, and data, with the ultimate goal of identifying and facilitating funding, resources, and research specifically dedicated to rFSGS.

Meeting Objectives

1. To convene a diverse group of rFSGS patients and their families, doctors, researchers, political leaders, and funders
2. To gather patient stories and experiences
3. To meet and hear from doctors and researchers regarding rFSGS and new opportunities for collaboration and investigation
4. To identify and encourage political support, research grants, and other funding mechanisms and contributions toward the science and cure of rFSGS
5. To identify those in the medical and scientific professions who can further assist in the research advancements and cure for rFSGS
6. To engage the U.S Food and Drug Administration, National Institutes of Health, and any other agencies that could assist in fostering and supporting research and development for rFSGS

For more information and to register please visit - https://www.scgcorp.com/rFSGS2024/